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Scleroderma & The Lungs

About the Group

We invite you to join our monthly Scleroderma & the Lungs Support Group!

 

This group is tailor-made for those seeking insight and support for issues related to lung health. If you have interstitial lung disease (ILD) or pulmonary hypertension, this group can be a great way to connect with others who understand what you’re going through. You’re not alone! Even if you’re just curious about potential lung issues related to scleroderma, anyone is welcome to join. Join from the comfort of home as all meetings occur over Zoom.

Why you should join:

Do you have questions about interstitial lung disease (ILD) and are you seeking a supportive community that understands your journey? Are you curious about the latest advancements in scleroderma and lung health, and eager to stay informed about potential treatment options? Are you interested in learning practical tips and techniques to optimize your oxygen usage and improve your overall quality of life?

Topics

  • Treatment options for ILD including oxygen, medication and transplant

  • Techniques to optimize oxygen use in your daily life

  • Knowledge of the transplant process from start to finish

  • The latest in lung research, including treatments and remedies

  • A safe space to connect with others who understand what you’re going through

  • Methods for building a support network directly suited to your emotional and physical needs

  • Knowledge in being your own advocate, both at the doctor’s office and beyond

  • Coping strategies to maintain your mental health

Support Group Sign Up

Are you interested in connecting with a support group? Fill out this form below and we will get you in touch with the support group that best fits your needs. 

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Schedule + Special Guests

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  • January 9: Special Guest Dr. Bradford Bemiss from Northwestern University to discuss treatment options including oxygen, medications and transplant

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  • February 13: Special Guest TBD

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  • March 12: Special Guest Dr. Jane Dematte from Northwestern University to discuss lung disease symptoms as well as common misconceptions and myths

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  • July 9: Special Guest TBD

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  • August 13: Special Guest TBD

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  • September 10: Special Guest Dr. Kavitha Sylvan from the University of Chicago to discuss Interstitial lung disease (ILD),a common complication of scleroderma that leads to inflammation and scarring of the lungs.​​

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Video Gallery

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