Resources and Education
We connect you with experts in the field to help you understand scleroderma and how to live better. Sessions cover a range of topics from nutrition to lung involvement to GI issues. We continue to add new programs throughout the year. Check back for updates or sign up for email alerts.
Why Should I Attend?
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Meet and learn from leading scleroderma specialists
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Ask questions and get the answers you need
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Connect with others living with scleroderma
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Find new ways to manage and improve your health
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Develop a support network
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Get motivated and inspired!
Who Should Attend?
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Scleroderma patients
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Caregivers
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Friends & family
Our Education Events
In-person Conferences
Our in-person patient education conferences are an invaluable way to connect with top professionals in the field of scleroderma while fostering community with other scleroderma patients and caregivers. These events are a rare opportunity to meet others who understand what you’re going through and get connected to additional resources you may not know about. Additionally, our conferences are packed with the latest research and insights, ensuring there’s always something new to learn, no matter how long you’ve been navigating life with scleroderma. Grow your knowledge, find your community, and feel empowered on your journey.
Webinars
Our online scleroderma webinars offer a convenient way to gain valuable insights and connect with leading professionals in the field—all from the comfort of your own home. Hosted via Zoom, these events provide an accessible platform for learning about the latest research, treatments, and practical strategies for managing scleroderma. Whether you're newly diagnosed or a long-time patient, our webinars are tailored to deliver relevant and actionable information. Follow us online to stay updated on our latest webinars.
Support Groups
Join a scleroderma support group to gain valuable knowledge and practical advice from your peers. Our groups are a great way to learn from each other's experiences and share ideas. While some groups are labeled by geographic region, we also offer topic-based support groups that focus on specific issues like lung health and exercise. Whether you’re seeking guidance, community, or new information, support groups are a great resource. Learn more.
Upcoming Education Events
Scleroderma Patient Education Conference
Saturday, May 3, 2025
Oakbrook, IL
Experts from around the nation will discuss various topics about scleroderma. This conference was developed for scleroderma patients and their caregivers to better understand your diagnosis, learn about treatment options, and connect with others in the scleroderma community. This program is free. Lunch will be provided.
Scleroderma 101
Wednesday, March 19, 2025
5 PM CST
If you've recently received a scleroderma diagnosis you may have a lot of questions about what to expect and what your options are. Join us for Scleroderma 101, a free virtual meeting led by Dr. Carrie Richardson from the Northwestern Scleroderma Program.
The meeting is held via Zoom. Anyone is welcome to attend. This is your chance to learn about scleroderma, get your questions answered, connect with others, and learn how to stay mentally and physically well.
Medicare 101 - for the Scleroderma Community
Saturday, February 8, 2025
12 PM CST
Join the Scleroderma Foundation of California for their “Medicare 101 - for the Scleroderma Community". This online presentation is specifically designed to help scleroderma patients understand the world of American health insurance coverage. You’ll learn helpful tips about: the Medicare basics, upcoming changes to Medicare, costs, coverage, price-saving measures, and more! This presentation is offered through licensed insurance broker Adrienne Bailey, who has spent over 20 years working with government agencies on healthcare coverage. Following her talk, the floor will be open to a Q&A session where your questions about Medicare will be answered.
Healthy Strategies for Coping with Chronic Illness
Wednesday, April 9, 2025
5:00 PM CST
How has a scleroderma diagnosis affected your mental and emotional health? This is an online workshop for newly diagnosed patients and their caregivers. The format will include both a presentation on coping as well as a group discussion in which participants can ask questions and share perspectives about coping with scleroderma.
This workshop is led by Dr. Judy Wilen, Clinical Psychologist and consultant to the Northwestern Scleroderma Program.
Past Education Events
Scleroderma Patient Education Conference
Saturday, October 19, 2024
Experts from the Northwestern Scleroderma Program will discuss various topics such as dermatology, scleroderma and the lung, PAH, nutrition, and more. This conference was developed for scleroderma patients and their caregivers to better understand your diagnosis, learn about treatment options and better manage the disease.
Scleroderma Patient Education Conference
Saturday, May 4, 2024
Experts from around the nation will discuss various topics such as treatment options, improving hand function, combatting fatigue, and more. This conference was developed for scleroderma patients and their caregivers to better understand your diagnosis, learn about treatment options, and connect with others in the scleroderma community.
Scleroderma and Oral Health: Ask the Dentist
Monday, April 29, 2024
Dr. Hogan will talk about issues that arise with oral care and scleroderma. We will discuss some of the methods your dental team can utilize to help manage your condition, and also some ways that you can help yourself and your dental team manage your condition. We will discuss some unique methods for maintaining your oral health care and will allow plenty of time for an open Q&A session.
Yoga for Scleroderma Webinar
Saturday, November 18, 2023
This webinar will teach you how to adapt and stay safe in a yoga class, whether you are exercising on the floor, in a chair or standing. Our demonstrators will show props, tips and tricks to make yoga accessible, showing common poses that offer a full range of motion for the spine, core/quad strengtheners, and how to hack down-dog, the pose that keeps people out of yoga classes, all while being GERD-friendly. We will discuss how yoga can reduce overstimulation of the vagus nerve and the benefits in daily life, especially digestion. We will end with a guided relaxation to reset the Rest & Digest cycle. There will also be time for questions throughout the presentation.
Fall Patient Education Conference
Saturday, October 21, 2023
Experts from the Northwestern Scleroderma Program will discuss various topics such as managing GI symptoms, scleroderma and the lung, PAH, nutrition, and more. This conference was developed for scleroderma patients and their caregivers to better understand your diagnosis, learn about treatment options and better manage the disease.
Scleroderma Patient Education Conference
Saturday, May 13, 2023
Topics include gastrointestinal management, lung involvement in scleroderma, dental care, exercise and more. This program is free. Lunch will be provided.
Scleroderma Lung Disease
Tuesday, March 21, 2023
If you have interstitial lung disease (ILD) as a result of scleroderma (SSc) or would like to learn more about how scleroderma affects the lungs, join us for a case discussion with the experts at the Northwestern Scleroderma Program. They will discuss various scenarios involving SSc and ILD and what is involved in considering treatment options.
Previous Webinars
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Holistic Pain Management
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Scleroderma 101
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Improving Mental Health With Chronic Illness
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Healthy Strategies for Coping with Scleroderma
Educational Videos
Explore our comprehensive educational resources by visiting our YouTube Channel for our informative content. We have over 90 educational videos that cover a diverse range of topics presented by expert speakers, including mental health, body movement, GI, ILD, Raynaud's, Nutrition, Dentistry, and much more.
New Drug Approvals for Scleroderma Interstitial Lung Disease
The Joy of Self-Care Through the Arts
Yoga for Scleroderma: Teaching and Practice
Skin Signs of Scleroderma
Cooking Nutritious Meals at Home: Advice from a Chef
Scleroderma & Lung Disease Webinar
Video Playlists
Events Calendar
Yoga For Scleroderma
Empower yourself to relieve symptoms and reduce stress! Yoga for Scleroderma was founded by Kathy Randolph to offer relief to scleroderma patients through yoga postures, breathing techniques and guided meditation. Their goal is to make yoga accessible for everyone so you can keep moving. Visit yogaforscleroderma.com to learn more.
Mogil's Mobcast
Ann Mogilevsky has been a scleroderma patient for over 20 years. Currently, she hosts the largest scleroderma podcast on streaming platforms. Her goal is to have a central place for those affected by scleroderma to speak about their experiences and learn from specialists about autoimmune related topics. In each update, she covers a wide range of topics including nutrition, medications, new research, and lifestyle changes. She also showcases the stories of others affected by scleroderma and how they have managed the disease. Learn more about her podcast and see all her available episodes in the link below.
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Questions?
We are here to help. Contact us with any questions you may have.
(312) 660-1131 info@stopscleroderma.org